What goes up...

is often a lot of hot air. In my mind I soar like an eagle, but my friends say I waddle like a duck.

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Location: No Man's Land, Disputed Ground

Flights of Fancy on the Winds of Whimsy

Tuesday, February 05, 2008

Yet another wake-up call

{it's your turn soon)

I have a new customer for my gardening: an elderly couple who live in a converted barn on a hillside overlooking the river Nadder and the railway line. They are both too old to manage the heavier garden work, and the man who mows the lawn and cuts the hedges likes to do a quick and easy hour's work with motorised tools and not get involved with any really physical work. So I have been pulling out the Russian Vine that has grown unchecked to the very top of the conifer cluster and high stone wall. It was killing the trees, and had begun to send tendrils up under the eaves into the roof space.

I began by clearing away the long grass and weeds which had grown up in the flower beds and borders, because the bulbs are already growing up, and she would like to be able to see them. Her sight is deteriorating due to macular disorder, and she cannot see clearly much further than her feet, let alone through a mass of weeds. I uncovered some early crocuses, and a beautiful deep purple flower that I still can't put a name to. Neither could she, because it was too far from the pathway for her to walk to.

Every few minutes, the man wanders out to where I'm working. He says one of two things: "I was going to ask you something, but I've forgotten it", or "Do you know a local mechanic who'll come out and see to my car?"

He has Alzheimer's disease. It came on him sometime in the last 12 months. He still has his long-term memory; he can remember where things are kept around the garden, and where his friend lives on the coast. And he can obviously remember something in the short term, because when he comes out to ask me the question, he knows that he decided to come and visit me for some purpose. But he doesn't realise that he is repeating the same behavior regularly. How can he, when he doesn't have the recall necessary to make comparisons? He doesn't even know that he has Alzheimer's, because what the doctor told him was probably lost five minutes later.

Some time ago, I wrote a story in response to a challenge; to write a short story in which all the action took place in a span of 5 minutes. There could be no reference to events outside of that window. I settled on imagining a pair of people living together in a home who had lost their short-term memories. At the time, I didn't go and look up anything about Alzheimer's or Dementia or other known conditions, I just wondered what it would be like if all you could do was live for the moment.

The story is here (Stalemate) if you want to read it. Just out of interest, when it was reviewed, the reviewer imagined two old men together. I knew better, but didn't contradict him; sometimes it's instructive to see how other people think.

What has focussed my attention now is that I seem to have imagined quite accurately what it is like to not remember, and I am worried. Is it going to happen to me? Or to someone close to me? Because at the moment, there is very little that can be done about it. The attitude in the health service is very much one of not wasting resources to deal with a problem where the sufferer is going to die within a short timescale anyway. There might also be a hint of not rushing to cure someone of a condition that they do not know they suffer from, and which doesn't actually cause pain or physical discomfort anyway. But does the sufferer feel mental anguish?

I am now becoming fascinated with what I might try to do if I myself began to lose my short-term memory. The first and probably most important question is, how would I know?

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8 Comments:

Blogger FirstNations said...

since my father-in-laws decline I've spent quite a while musing on the same subject. and the subject absolutely terrifies me.

5:36 pm  
Blogger FirstNations said...

the story was terrifying too. sopwith, i'm linking it. hats OFF.

5:39 pm  
Blogger Zig said...

how much does he know that he is suffering thus? That must be the hardest bit, the knowing you're heading inevitably down the spiral until the point when you no longer recall the top of the coil; after that I imagine life is not too unpleasant, except for everyone else.

5:39 pm  
Blogger dinahmow said...

6 or 7 years ago, a friend was beginning to worry that he was constantly forgetting little things.After exhaustive tests, a specialist said he was just trying to do too much and needed to ease-off the workload. Apparently, when the mind starts to slide, the sufferer is unaware of the slide. This does not help those of us who do notice the decline, but perhaps it's a comfort to know the afflicted is not suffering?

11:20 pm  
Blogger P. said...

Her sight is deteriorating due to macular disorder

Dammit. I will go for that eye test. Obscure reference, soz. Carry on.

12:15 am  
Anonymous Anonymous said...

Doesn't seem that much like hes suffering - I mean if hes happy....

12:03 pm  
Anonymous Anonymous said...

Yes, it seems that the anticipation of the slide is worse than the being there, as then you wouldn't remember where you are. Then there are those that have to care for you, always seeing you circle like that. Oh, hope to never approach that point.

5:15 pm  
Blogger Sopwith-Camel said...

FN: Thanks for the links, I'm sorry that you found it terrifying. I found the story amusing as I wrote it, because I knew that both characters were old friends, and didn't know any better anyway.

Ziggi: I don't think he knows, it seems to be those around him who are suffering most. I think he has a vague sense of loss. He does of course know he's old, and so I think he accepts quite a lot of it as inevitable.

Dinamow: I've had the stress-related memory failure too, I couldn't remember my PIN for the cash card one day. It was there again the next day, but a worrying experience all the same.

Paula: cease this glass obsession, there's no need to keep seeing life through them darkly, (equally obscure reference :)

Mutleythedog: I tend to agree with you, but I am still worried that he does indeed know what's happening. My biggest question is "does he still remember his dreams?" I would find my life bleak and stale if I no longer had the breakfast review of the night before.

Joeinvegas: By one of those quirks, the day after I posted this, the BBC news site ran an article saying a connection had been discovered between folic acid and the alleviation of Alzheimers. The trouble is, I hate broccoli, and that's what I would have to be eating to get enough Folic acid inside me to do any good.

9:43 am  

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